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National Council of State Leaders
Over the past several years, the Turner Syndrome Foundation has received numerous pleas for regional resources and assistance for professional providers and consumers alike. In an effort to meet this demand, the National Council of State Leaders has been organized.
The Turner Syndrome Foundation's National Council of State Leaders are volunteers organized and devoted to improving the lives of patients affected by Turner Syndrome. This council has evolved in response to the urgent call for leadership and access to specialized care. The purpose of the council is to provide a greater understanding of Turner Syndrome to reduce the age of diagnosis, to improve quality of care practices, and to improve longterm outcomes for all baby girls born with this complex, and often misunderstood, chromosomal condition.
Find Resources Near Your State
Alabama
Alaska
Arkansas
Arizona
California
Colorado
Connecticut
Delaware
Florida
Georgia
Hawaii
Idaho
Illinois
Indiana
Iowa
Kansas
Kentucky
Louisiana
Maine
Maryland
Massachusetts
Michigan
Minnesota
Mississippi
Missouri
Montana
Nebraska
Nevada
New Hampshire
New Jersey
New Mexico
New York
North Carolina
North Dakota
Ohio
Oklahoma
Oregon
Pennsylvania
Rhode Island
South Carolina
South Dakota
Tennessee
Texas
Utah
Vermont
Virginia
Washington
West Virginia
Wisconsin
Wyoming
We are here to help, contact us!
ALABAMA
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Join TSF Alabama Community Page on Facebook
Alaska
 Chairperson: Kimberly Perry
Email: kperry@tsfusa.org
Kudos to Kim Perry and her daughter, Ashley, for their awareness efforts in Alaska. Ashley was chosen as the Children's Miracle Network's Champion to represent Alaska in both Washington, DC and Florida. Her mom, Kim, is a parent advocate and she along with her friends at Turner Syndrome Foundation couldn't be more proud of Ashley's message of hope and strength.
Watch video interview at www.KTUU.com
Join TSF Alaska Community Page on Facebook
Leadership sought in Alaska
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Stump Jumpin' Kennel - Wade Marrs, Musher is a champion for Turner Syndrome Awareness! Good luck in 2017!
Arkansas
Join TSF Arkansas Community in Arkansas on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
.
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Arizona
Join Team TSF Arizona Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
.
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Volunteer with Life Time Fitness in Tempe, AZ
See flyer for more information
California
Join Team TSF California Community on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Specialized Centers of Care
Lucile Package Children’s Hospital Stanford
725 Welch Rd, Palo Alto, CA 94304
Tel# 650-723-5791
Contact: Ofelia Colin
Website: http://www.stanfordchildrens.org/
Children's Hospital Los Angeles
4650 Sunset Blvd, Mailstop #61
Los Angeles, CA 90027
Tel# 323-361-4606
Contact: Janet Guerrero
Website: http://www.chla.org/medical-management-well-known-genetic-disorders
Radys Children's Hospital, UC San Diego
7910 Frost Street, Ste. 200
San Diego, CA 92123
Contact: Karen Oerter Klein
Tel# 858- 966-5999
Website: http://www.radyschildrenshospital.org
Colorado
Join TSF Colorado Community on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Specialized Center of Care for Patients with Turner Syndrome at:
Department of Endocrinology at Children’s Hospital Colorado
Anschutz Medical Campus 13123 East 16th Ave., Aurora, CO 80045
Tel: 720-777-1234
Contact: Susan Howell
Website: http://www.childrenscolorado.org/departments/endocrinology
Connecticut
Colleen Joyce, NCSL Volunteer
cjoyce@tsfusa.org
Join TSF Connecticut Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Specialized Center of Care for Patients with Turner Syndrome:
Connecticut Children’s Medical Center
282 Washington Street, Hartford, CT 06106
Contact: Karen Rubin, MD
Tel: (860) 545-9000
Website: http://www.connecticutchildrens.org/resources/about-us/locations/
Social Planned
We are planning to meet early October to spend time out in nature going apple picking. More information will be forthcoming in the monthly enewlsetter. Contact: Ruth at rmclean@tsfusa.org
Delaware
Amber Hudson
de@tsfusa.org
Join TSF Delaware Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Florida
Carol Bernabei advocacy@tsfusa.org
Join TSF Florida Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Specialized Center for the Care of Turner Syndrome
Turner Syndrome Center at the University of Florida
200 SW Archer Road, Gainesville, FL 32608
Tel: 352-265-PEDS or 352-273-5625 Fax: (352) 627-4415
Website: https://ufhealth.org/turner-syndrome-center-university-florida
All Children’s Hospital
501 6th Avenue South, St. Petersburg, FL 33701
Tel: 727-898-7451 Toll-Free: 800-456-4543
Website: http://www.allkids.org
Team TSF Awareness events are being planned including marathons, health expos and more! Check back for more details once they become available for public consumption, and general registration becomes available.
If you are interested in working on NCSL in Florida, please complete a volunteer application and a cover letter including your interest, experience and availability. Thank you!
Georgia
Join TSF Georgia Community on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Specialized Center of Care for Patients for Patients with Turner Syndrome:
Emory Children’s Center
2015 Upper Gate Drive NE, Atlanta, GA 30322
Contact: Aretha Samuels, Admin Assistant
Tel: (404) 778-2400 Fax: (404) 727-3423
Website: http://www.choa.org/Childrens-Hospital-Services/Diabetes/Meet-the-Team/Childrens-Physician-Group-Diabetes
Hawaii
Join TSF Hawaii Community on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Idaho
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Join TSF Idaho Community on Facebook
Team TSF in Idaho!
Support Team TSF
I originally contacted TSF to become a team member on an existing team, then discovered there was a need for involvement in the inland Northwest. I love to run and wanted to use this hobby to benefit something near and dear to me, and since my oldest daughter has TS, we also saw a gap in an organized TS community in our area. I contacted a number of different races, and chose the Coeur d'Alene marathon for a number of reasons. 1) it is closest to me (just an hour away) and 2) the Race Director has been very accommodating and willing to allow us to become a part of her event. 3) the race is over a holiday weekend in a resort town and is a destination race for people from all over the US and Canada.
Contact Becky Haag for additional information, to become a Team member, or to help with a meet and greet over Memorial Day weekend in northern Idaho. Phone or text (text preferred) 208-946-1484 or email (preferred method) bphaag@gmail.com . Or you can message me on facebook: Becky Pruitt Haag. Stella and I look forward to meeting you!
Illinois
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Join TSF Illinois Community on Facebook
Specialized Center of Care for Patients with Turner Syndrome:
Lurie Children’s Hospital
225 E. Chicago Ave., Chicago, IL 60611
Tel: 1 (800) 543-7362
Contacts: Lauren Robinson, RN Tel: (312) 227-6495 or Eliz Capella Tel: (312) 227-4641
Website: https://www.luriechildrens.org/en-us/care-services/specialties-services/endocrinology/Pages/index.aspx
Indiana
Join TSF Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Iowa
Join TSF Iowa Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Kansas
Join TSF Kansas Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Kentucky
Chairperson: Amanda Greenwell
Email: agreenwell@tsfusa.org
Join TSF Kentucky Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Louisiana
Chairperson: Kendra Naylor
knaylor@tsfusa.org
Join TSF Louisiana Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Maine
Chairperson: Kathryn Caron
Email: kcaron@tsfusa.org
Join TSF Maine Community Page on Facebook
Leadership sought in Maine
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Team TSF Awareness events are being planned including marathons, health expos and more! Check back for more details once they become available for public consumption, and general registration becomes available.
If you are interested in working on NCSL in Maine, please complete a volunteer application and a cover letter including your interest, experience and availability. Thank you!
Maryland
Join TSF Maryland Community on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Massachusetts
Chairperson: Sheila Tweeddale
Email: stweeddale@tsfusa.org
Join TSF Massachussetts Community Page on Facebook
Leadership sought in Massachusetts
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Specialized Centers of Care for Patients with Turner Syndrome:
Turner Syndrome Clinic at Mass General Hospital for Children
Yawkey Center for Outpatient Care, Suite 6B, 32 Fruit Street, Boston, MA 02114
Contact: Sheri Mangini, Service Coordinator, Pat Ryan, Pediatric Endo, and Sylvia Curry, Reproductive Endo
Tel: 617-726-1561 Fax: 617-726-1566
Website: http://www.massgeneral.org/children/services/treatmentprograms.aspx?id=1682
Team TSF Awareness events are being planned including marathons, health expos and more! Check back for more details once they become available for public consumption, and general registration becomes available.
If you are interested in working on NCSL in Massachusetts, please complete a volunteer application and a cover letter including your interest, experience and availability. Thank you!
Michigan
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Join TSF Michigan Community on Facebook
Specialized Center of Care:
C. S. Mott Children's Hospital
1540 E. Hospital Drive
Ann Arbor, MI 48109
Pediatric Endocrinology (732) 764-5175
Referral from primary care physician required
A Family Carry Race
July 4, 2015 11am - 3pm
Family Fun in the Park
11048 68th Ave.
Allendale, MI 49401
Norah Lane Roelofs Memorial Page
Family Carry Race to benefit the Norah Lane Roelofs Memorial Fund (a composite fund of the Allendale Community Foundation and the Turner Syndrome Foundation). This event will repeat annually.
To learn more about this event and to register, please visit www.familycarryrace.com
 
Minnesota
Chairperson: Kristen Johnson
kjohnson@tsfusa.org
Join TSF Minnesota Community on Facebook
Leadership sought in Minnesota
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Mississippi
Join TSF Mississippi Community on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Missouri
Chairperson: Angela Ariza-Fehn
MO@tsfusa.org
Join TSF Missouri Community on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Specialized Centers for the Care of Turner Syndrome:
Children's Mercy Hospitals and Clinics Turner Syndrome Clinic
Children’s Mercy on Broadway- Turner Syndrome Clinic
3101 Broadway Blvd, Kansas City, MO 64111
Contact: Kathy Williams
Tel: (816) 960-8803 Toll free: (888) 563-3070
Website: http://www.childrensmercy.org/Turner-Syndrome/
Turner Syndrome Clinic at Cardinal Glennon Children’s Medical Center
1465 S. Grand Boulevard, St. Louis, MO 63104
Contact: Dr. Susan Myers, MD
Tel: 314-577-5648
Website: http://www.cardinalglennon.com/MedicalSpecialties/EndocrinologyDiabetes/Pages/default.aspx
Montana
Join TSF Montana Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Nebraska
Join TSF Nebraska Community on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Nevada
Join TSF Nevada Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
New Hampshire
Join TSF New Hampshire Community on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
New Jersey
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Chairperson: Kym Hall
Email: khall@tsfusa.org
Join TSF New Jersey Facebook Community Page on Facebook
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February Declared Turner Syndrome Awareness Month
"It's official! February has been declared Turner Syndrome Awareness Month in New Jersey. On August 19, 2013 the Senate unanimously approved the bill. Gov. Chris Christi has signed it into law."
See attached press release announcing the new law NJ Law
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PRINT A C MOORE FLYER - BRING WITH YOU
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Specialized Center of Care for Patients with Turner Syndrome
The Alfiero and Lucia Palestroni Birth Defects Center, St. Joseph’s Children’s Hospital Youth and Adult Care
11 Getty Avenue, Paterson, NJ 07503
For more information or to schedule an appointment, please contact:
Loren Pugliese, M.S.G.C, Genetics Division, St. Joseph's Regional Medical Center, Paterson, NJ (P) 973-754-2727, (F) 973-754-4521
Website: https://stjosephshealth.org/
Robert Wood Johnson Medical School
Children’s Health Institute of New Jersey
89 French Street, Suite 2300, New Brunswick, NJ 08901
Contact: Ian Marshall, MD
Tel: 732-235-6230
Website: http://umg.umdnj.edu/public/patient_info/index.html
The Molly Center for Center for Children with Diabetes and Endocrine Disorders
Hackensack University Medical Center
30 Prospect Avenue, WFan Building, Hackensack, NJ 07601
Contact: Javier Aisenberg, MD or Amy Chartoff , APN
Tel: 551-996-5329
Website: http://www.hackensackumc.org/our-services/joseph-m-sanzari-childrens-hospital/the-molly-center-for-children-with-diabetes-and-endocrine-disorders/
Volunteer
Team TSF Awareness events are being planned including marathons, health expos and more!
If you are interested in working on NCSL in New Jersey, please complete a volunteer application and a cover letter including your interest, experience and availability. Thank you!
New Mexico
Join TSF New Mexico Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
New York
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Join TSF New York Community on Facebook
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Specialized Centers of Care for Patients with Turner Syndrome:
Winthrop University Hospital
259 First Street, Mineola, NY 11501
Contact: Paul Saenger, MD
Tel: (516) 663-2264
Website: http://www.winthrop.org/
Children's Hospital at Montefiore
3415 Bainbridge Ave., Bronx, NY 10467
Contact: Rubina Heptulla, MD or Susan Wesoly, RPA-C
Tel: (718) 920-4664
Website: http://cham.org/services/endocrinology/appointments/
Weil Cornell Medical College
1300 York Avenue, New York, NY 10065
Tel: (212) 746-1503 Fax: (212) 746-8527
Contact: Thomas Cunningham
Website: http://www.weillcornellmedicine.com/clinical_practices_and_divisions/endocrinology_diabetes_and_metabolism/
Social Planner
Contact: Ruth at rmclean@tsfusa.org
TEAM TSF: Rock 'n' Roll New York 10k in October 8, 2016
Prospect Park Brookly, New York
Register with Team TSF
Team TSF Awareness events are being planned including marathons, health expos and more! Check back for more details once they become available for public consumption, and general registration becomes available.
If you are interested in working on NCSL in New York, please complete a volunteer application and a cover letter including your interest, experience and availability. Thank you!
Patient Caregiver Workshop
Montefiore Children's Hospital, Bronx, NY
October 21, 2016 2:30 p.m. to 6:00 p.m.
href="Register online": http://www.turnersyndromefoundation.org/events-patient.html#October%202016%20-%20Montefiore
North Carolina
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Join TSF North Carolina Community on Facebook
Specialized Centers for the Care of Turner Syndrome
UNC School of Medicine Turner Syndrome Clinic, UNC Department of Pediatrics
260 MacNider Building, CB# 7220, UNC School of Medicine, Chapel Hill, NC 27599
Contact: Jennifer Leonard
Tel: (919) 966-1505 Fax: (919) 966-7299
Website: http://pediatrics.med.unc.edu/turnersyndrome
North Dakota
Join TSF North Dakota Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Ohio
Join TSF Ohio Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Specialized Centers for the Care of Turner Syndrome:
Cincinnati Children's Turner Syndrome Center
3333 Burnet Avenue, Cincinnati, Ohio 45229
Contact: Lori Casnellie, RN
Tel: 513-636-0226
Appointment: 513-636-4744, option 1
Website: http://www.cincinnatichildrens.org/service/e/endocrinology/programs/turner-syndrome/
Turner Syndrome Clinic
Nationwide Children's Hospital Outpatient Care Center
555 S. 18th Avenue, Columbus, OH 43205
Contact: Dr. David R. Respaske, MD
Tel: 614-722-4425
Website: http://www.nationwidechildrens.org/turner-syndrome-clinic
Turner Syndrome Center at Akron Children’s Hospital
Considine Professional Building
215 W. Bowery Street, Suite 6400, Akron, OH 44308
Contact: Dr. Cydney Fenton, MD or Kim Daroski, RN, Clinical Leader
Tel: 330-543-3276
Website: https://www.akronchildrens.org/cms/fad_locations/turner_syndrome_center/
Oklahoma
Join TSF Oklahoma Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Specialized Centers for the Care of Turner Syndrome
University of Oklahoma College of Medicine Turner Syndrome Clinic
1200 Children's Avenue, Suite 4500, Oklahoma City, OK 73104
Contact: Traci Schaeffer, RN Tel: 405-271-6764 Fax: 405-271-3093
Website: http://www.oumedicine.com/pediatrics/department-sections/diabetes-endocrinology/services/endocrinology/TS
Oregon
Join TSF Oregon Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Specialized Center of Care for Patients with Turner Syndrome:
Doernbecher Children’s Hospital Endocrinology Clinic
Physicians Pavilion, 1st Schnitzer Diabetes Health Center
3181 SW Sam Jackson Park Road, Portland, OR 97239
Contact: Candi Hepper, RN
Tel: (503) 494-3273
Website: http://www.ohsu.edu/xd/health/services/clinics/index.cfm?placeid=EndocrinologyClinic&WT_rank=1
Pennsylvania
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation.
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Join TSF Pennsylvania Community on Facebook
Specialized Centers for the Care of Turner Syndrome
Turner Syndrome Program at Children's Hospital of Philadelphia
34th Street and Civic Center Boulevard, Philadelphia, PA 19104
Contact: Denise Gruccio, MSN, CRNP
Tel: 215-590-3174
Website: http://www.chop.edu/service/turner-syndrome-program/home.html
Children’s Hospital of Pittsburgh
One Children's Hospital Drive, 4401 Penn Ave., Pittsburgh, PA 15224
Contact: Tammy Nenadovich, Endocrinology
Tel: 412-692-5325
Website: http://www.chp.edu/CHP/Home
Thomas Jefferson University Kimmel School of Medicine
833 Chestnut Street, Suite 1210, Philadelphia, PA 19107
Contact: Judith L. Ross, MD or Karen Kowal
Tel: (215) 955-6520 Fax: (215) 860-0408
Website: http://www.jefferson.edu/#health
Lehigh Valley Hospital
1200 Cedar Crest Blvd., Allentown, PA 18103
Tel: 610-402-8000
Website: https://www.lvhn.org/conditions_treatments/childrens_care/turner_syndrome/learn_about_turner_syndrome
SAVE THE DATE Saturday, September 30, 2017
Last day to register: 9/22/17
Corporate Sponsors and Teams are invited
Rhode Island
Join TSF Rhode Island Community on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
South Carolina
Chairperson: Nancy Lynn Carter
ncarter@tsfusa.org
University of South Carolina School of Medicine
Office Hours - 8:30 a.m. - 4:30 p.m.
Phone: (803) 434-7990
Fax: (803) 434-4669
9 Medical Park, Suite 230
Columbia, SC 29203
Whitney Winn Brown, M.D., Malaka B. Jackson, M.D., Lisa Gallo Knight, M.D., Laura Szadek, APRN, DNP, CPNP
Join TSF South Carolina Community Facebook Page
Leadership sought in South Carolina
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
South Dakota
Join TSF South Dakota Community Facebook Page
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Tennessee
Join TSF Tennessee Community Facebook Page
Leadership sought in Tennessee
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Specialized Center of Care in Tennessee
Monroe Carrell Jr. Children’s Hospital at Vanderbilt
2200 Children’s Way, Nashville, TN 37232
Tel: 615-322-7427
Website: https://www.childrenshospital.vanderbilt.org/index.php
Team TSF Awareness events are being planned including marathons, health expos and more! Check back for more details once they become available for public consumption, and general registration becomes available.
If you are interested in working on NCSL in Tennessee, please complete a volunteer application and a cover letter including your interest, experience and availability. Thank you!
Join Team TSF in Nashville at the Rock 'n' Roll Marathon again 2017
For more information or to register
Texas
Join the TSF Texas Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Specialized Center of Care for Patients with Turner Syndrome:
The University of Texas Health Science Center at Houston
7000 Fannin, Suite 1200, Houston, Texas 77030
Tel: 713-500-4HSC or 713-500-4472
Website: https://www.uth.edu/
AWARENESS:
Team TSF is an official charity of the Rock 'n' Roll San Antonio Marathon in 2012 and 2013
If you would like to lead the team in 2017, visit http://www.turnersyndromefoundation.org/events-teamtsf.html
Team TSF Awareness events are being planned including marathons, health expos and more! Check back for more details once they become available for public consumption, and general registration becomes available.
If you are interested in working on NCSL in Texas, please complete a volunteer application and a cover letter including your interest, experience and availability. Thank you!
Utah
Join the TSF Utah Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Vermont
Join the TSF Vermont Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Virginia
Join our TSF Virginia Community Page on Facebook
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Specialized Center of Care for Patients with Turner Syndrome:
Children’s Hospital of Richmond at VCU
Pembrooke Office Park, 2305 N Parham Rd, Ste 1, Henrico, VA 23229
Tel: 804-828-2467
Website: http://www.chrichmond.org/
Washington
Join the TSF Washington Facebook Community Page
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Specialized Centers for the Care of Turner Syndrome
UW Medical Center Genetic Medicine Clinic Turner Syndrome Clinic
1705 North East Pacific Street, K253, Box 357720, Seattle, WA 98195
Contact: Virginia P. Sybert, MD Tel: 206-598-4030 Fax: 206-598-3269
Website: http://depts.washington.edu/medgen/clinics.shtml
West Virginia
Join the TSF West Virginia Facebook Community Page
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Wisconsin
Chairperson: Brooke Schmidtke
bschmidtke@tsfusa.org
Join the Community Page: TSF Wisconsin
Video: Rosedale Woman Makes Best of Living with Turner Syndrome
Support Brooke's My Story Page Read & Donate
_____
Dr.David B. Allen, MD
Professor of Pediatrics
University of Wisconsin School of Medicine and Public Health Head of
Division of Diabetes and Endocrinology Director, Endocrine/Diabetes
Fellowship Program UW American Family Children's Hospital - Madison
(608) 263-6420
_____
Leadership sought in Wisconsin
The Turner Syndrome Foundation will work as a team with state leaders to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
Special thanks!! TEAM TSF'S AVA'S ANGELS
Friday Night Live 5k Lights Run, in partnership with the "Waukesha Downtown Business Association," is a premier 5k taking place in a closed course through historic downtown Waukesha and through the beautiful Frame Park!
Wyoming
Join the Community Page: TSF Wyoming
New leadership through a participatory council of volunteers organized through the Turner Syndrome Foundation will work as a team to build a community of programmatic services in this region. Applications are being sought for individuals who are passionate about the cause and who are willing to donate their time and energy towards the advocacy objectives of the National Council of State Leaders. If you or someone you know may be a good candidate for this volunteer opportunity, please contact us. Check back to this page often to realize any new activities, volunteer opportunities, and to register to participate in program events in your area.
Learn more about volunteer opportunities with the Turner Syndrome Foundation
Volunteer information and application
Contact us: Email info@tsfusa.org or call 1(800)594-4585
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